February 2, 2009
· Filed under Uncategorized
As strange as it might sound. Leprosy, tuberculosis, psoriasis, type 1 diabetes and MS might have one common fact — clofazimine. Clofazimine has been on the market for more than 100 years. Some brilliant people at Johns Hopkins have found out that clofazimine has some kind of interaction in our immune system. It would be too technical to go further into detail — but you can read more about this at the sciencedaily website.
Where do we go from here? All I can say on this matter is that I do believe that with all the good news I am reading tthese days that our live will get better. They will find the one medication that will be able to cure MS at one point. We just have to hang in there and hope that the ms cure will come in time for us to have a positive outcome, as well.
Try to have a positive outlook, as well. To me — every day I read about new studies in MS research is a good day. All we have to do is wait for the one big finding that will help us all. And who knows — this day might come quicker than we think.
So cross your fingers and take care.
January 30, 2009
· Filed under Uncategorized
This morning I woke up to this great news on my viigo blackberry newsreader. I thought I might share this inforamtion here on my blog so more and more people will hear about it.
The BBC reported today that MS stem-cell treatment as a ’success’. A small study had been done to see whether stem cells could be a way to help people with MS. The study suggested two things
1.)stem-cell transplats may control MS symptoms
2.)and even better — may even reverse multiple sclerosis symptoms
Of course, there is always the ethic aspects and some people will always oppose stem cell research etc. But then there are people who believe that there is nothing wrong with stem-cell research and that we should do everything we can in order to save people’s life. And if stem-cells can be used to make our life better, than I wouldn’t mind these kind of treatments.
If you are interested in reading the rest of the article check out this link MS stem-cell treatment success.
January 23, 2009
· Filed under ABC drugs
When I read this post today on the internet I became very excited. Knowing that there might be a pill that could replace daily or weekly injections to decrease the amount of relapses sounds just great. I hate those shots — in fact this is the reason why I stopped taking them 10 months ago. And knoock on wood I had no major problems every stopping the medicine. But if I could have the option of taking a pill instead of the injection I would be more likely go back on my medication.
But what exactly is Cladribine. Cladribine is commonly used for leukemic reticuloendotheliosis. This mediciation is not given over a long period of time. So this could be the downfall for Cladribine as far as MS is concerned. We all know that MS will stick with us for the rest of our life. And this could mean that we will have to take Cladribine for a much longer period of time. And how about the side effects? Cancer treatment is known for heavy side effects.
But we should consider all aspects of this. Not only the side effects but also the (hopefully, positivs outcome. If taking Cladribine might cause me to be a little more fatigue but I won’t have to end up in a wheelchair than I would be very happy to try this pill. I guess, it all depends on what we would like to do with our lives. Even if it would mean that we would only get 5 or 10 more years good life without the use of a wheelchair or a walker. These 5 or 10 years of possible fatigue are better than what could happen to us if we wouldn’t feel that
January 23, 2009
· Filed under Uncategorized
January 3, 2009
· Filed under Living with M.S.
There is a big chance that the Wii Fit is not as good as people say it is. But all I can say on this matter is the fact that I have been using the Wii Fit for almost 6 months on a daily basis. I love my daily exercise. Of course, i have read the horror stories about the Wii Knee. But who cares? And who believes in this anyway.
Personally, I see the Wii Fit as a tool to keep me
1.)busy
2.) healthy
3.) in a good mood
This is all I am asking for. And this is all I am getting. So why don’t you try it yourself?
March 1, 2008
· Filed under Living with M.S. · Tagged afford to go to the doctor, affordable health care, election, health care, paying for emergency room visit
No. I am no allowed to vote in the upcoming elections but this doesn’t mean that I don’t watch what is going on out there. Personally, I like what the two democrat candidates have to say about health care for everybody. Surely, they both have different views on how to do it – but the bottom line is that things might get better with any of those two proposals. Anything is better than the status quo.
Read the rest of this entry »
February 26, 2008
· Filed under Living with M.S. · Tagged M.S., ms log, Multiple Sclerosis, multiple sclerosis log, recording symptoms
Personally, I don’t write a Multiple Sclerosis log myself as I don’t always want to be reminded if my MS. But I can see that it helps people who have more symptoms. And for these patients it is essential to know what is going on, why it is going on, what has been tried to resolve the problem and was it successful or not. These are the kinds of information your neurologist needs from you if you see him or her at the next appointment. And I know that once I will have more problems myself — I will start the journal. No question about that.
Read the rest of this entry »
February 25, 2008
· Filed under ABC drugs · Tagged Avonex, avonex side effects, flu like symptoms, M.S., ms injection, Multiple Sclerosis, side effects of ms medication
I just heard some thoughts about better ways to take Avonex shots. A friend told me about a woman who had suffered from the same Avonex side effects I have been suffering but she had trained herself from not getting affected by those flu like symptoms any longer. She had tried many different ways but found out that it is best to take the shot earlier during the day and fight the side effects during the day. Instead of taking the shot at dinnertime she is taking her shot sometimes after lunch and keeps her regular life going. After a few weeks her body got used to dealing with those side effects until not only the shot but also the side effects were a piece of cake.
Read the rest of this entry »
February 25, 2008
· Filed under Living with M.S. · Tagged M.S., Motor Vehicel Accident, Multiple Sclerosis, MVA
Two days ago I have been in a car accident and I am scared. I have a cervical sprain and my nervousness results from the fact, that all of my lesions are in the lower part of the brain and in my upper spine. Just were my head was moving around in the accident.
Read the rest of this entry »
February 22, 2008
· Filed under Living with M.S.
Sometimes it can be amusing when I lose things over and over again. It is not funny when I am losing the family wallet with tons of credit cards, drivers license and somehow my whole life every few months. It is a pain to get all those documents back (especially when you are here on a student visa and have no real legal way of doing anything without going to different places (school, social security administration and God know where else). I guess I am just real absent minded. In the beginning I was blaming all of that on my Multiple Sclerosis.
Read the rest of this entry »
